Wednesday, October 28, 2009
Freedom is awesome... (gait trainer 2)
The song is one we sing all the time in our family. It is so sweet!! It is based on a Sandra Boynton book, and sung by Davy Jones, of The Monkees. I love Davy!
Friday, October 23, 2009
New gait trainer (gait trainer 1)
Joshua trying out his new Kidwalk, at PT, for the first time. I think it's going to be a great fit for him!
Saturday, October 3, 2009
FAST hosts "An Evening With the Stars"!
News source
Foundation for Angelman Syndrome Therapeutics website here.
October 2, 2009
FAST, The Foundation for Angelman Syndrome Therapeutics, will host an “Evening with the Stars” on Saturday, December 5, to benefit research toward a cure for the rare neurological disorder, Angelman Syndrome (AS).
Gala attendees are set to include actor and Golden Globe Winner Colin Farrell and singer/songwriter Regie Hamm, both of whom have been touched by AS through the diagnoses of their children. Hamm, who won the 2008 American Idol Songwriter competition, will also perform his hit, “Time of My Life,” which became a smash hit single for Idol winner David Cook.
An evening of fun and entertainment, attendees will enjoy a cocktail reception, four-course dinner, dancing and silent auction; sponsored in part by FAST corporate sponsors LexisNexis and Innovative Mag-Drive. The proceeds raised throughout the night will be donated for research dedicated to finding a cure for Angelmen Syndrome, a disorder that is often misdiagnosed as autism, cerebral palsy and/or mental retardation.
“We are excited about the progress we’ve made in helping to find a cure for Angelman Syndrome,” said Paula Evans, founder and chairperson of FAST. “Because this disease is so often misdiagnosed, it’s important for us to raise awareness and funds to continue the great strides we’ve already achieved. We hope to surpass last year’s success with yet another fantastic evening.”
“The families involved with FAST have created a strong support network while tirelessly assisting those dedicated to finding a cure. I’m extremely proud to support such an inspiring organization,” said Farrell.
FAST will kick-off the evening at 6:00 p.m. at the Hyatt Regency Chicago located at 151 East Wacker Drive in Chicago. Individual tickets are $150 or a table for ten can be purchased for $1,500. For more information or to purchase tickets, corporate sponsorships or program advertising, please visit www.CureAngelman.org.
Foundation for Angelman Syndrome Therapeutics website here.
October 2, 2009
FAST, The Foundation for Angelman Syndrome Therapeutics, will host an “Evening with the Stars” on Saturday, December 5, to benefit research toward a cure for the rare neurological disorder, Angelman Syndrome (AS).
Gala attendees are set to include actor and Golden Globe Winner Colin Farrell and singer/songwriter Regie Hamm, both of whom have been touched by AS through the diagnoses of their children. Hamm, who won the 2008 American Idol Songwriter competition, will also perform his hit, “Time of My Life,” which became a smash hit single for Idol winner David Cook.
An evening of fun and entertainment, attendees will enjoy a cocktail reception, four-course dinner, dancing and silent auction; sponsored in part by FAST corporate sponsors LexisNexis and Innovative Mag-Drive. The proceeds raised throughout the night will be donated for research dedicated to finding a cure for Angelmen Syndrome, a disorder that is often misdiagnosed as autism, cerebral palsy and/or mental retardation.
“We are excited about the progress we’ve made in helping to find a cure for Angelman Syndrome,” said Paula Evans, founder and chairperson of FAST. “Because this disease is so often misdiagnosed, it’s important for us to raise awareness and funds to continue the great strides we’ve already achieved. We hope to surpass last year’s success with yet another fantastic evening.”
“The families involved with FAST have created a strong support network while tirelessly assisting those dedicated to finding a cure. I’m extremely proud to support such an inspiring organization,” said Farrell.
FAST will kick-off the evening at 6:00 p.m. at the Hyatt Regency Chicago located at 151 East Wacker Drive in Chicago. Individual tickets are $150 or a table for ten can be purchased for $1,500. For more information or to purchase tickets, corporate sponsorships or program advertising, please visit www.CureAngelman.org.
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