Wednesday, December 22, 2010
Tuesday, December 21, 2010
MERRY CHRISTMAS!
Joy Love Story Holiday
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Sunday, December 19, 2010
Walking...
Joshua is so very, very proud of himself. He really wants to walk SO badly, it's the darn balance disorder he battles with, but he keeps trying every day. He works so hard. I really believe this WILL be the lucky walker for him. Another mom, who has a daughter with Angelman Syndrome, gave us this walker. Her daughter, Erinn, learned to walk using it. I've never seen him take to a piece of equipment like this before. He does somewhat like his gait trainer, BUT the problem with it is that he still leans forward so much of the time in in, and he can sit and coast in it! He also can't just sit down while in it, say on the floor if he goes over to others who are playing, and they sit down, he is still strapped into the gait trainer. With this walker, a Kaye Reverse Walker, he can walk over to something/someone and then decide to sit down, and then get up and go again.
Joshua also, will NEVER usually hold onto anything! So to see him take to this, and HOLD the handles like he does, is truly amazing. The only things he will normally hold onto, are things that he is bringing to his mouth to chew on, or toys to bang something with! It has to be useful to him. So I'm just beyond amazed! ;-)
He usually PREFERS to only use *me* as his mobility partner. I will keep updating, I am beyond excited!!!
Love one another!~Yvonne
Friday, December 17, 2010
A Social Network Christmas
The story of Joseph, Mary and the conception of Jesus, the visit to cousin Elizabeth and her husband Zechariah, and birth of the John the Baptist...as told through status updates and wall posts on Facebook. I thought this was very creative and well done!
Tuesday, December 14, 2010
Thank you Western Beef!
Foundation for Angelman Syndrome Therapeutics (FAST) Makes Great Strides in Driving Awareness and Raising Research Funding
Click the above article to read about the astounding support that Western Beef is giving to FAST. Please support Western Beef if they are in your area. If you are a parent, grandparent, sibling, aunt, uncle, cousin, or just a fan of a child with Angelman Syndrome, this is such a wonderful blessing to us all!!
As you can see from the article the partnership with Western Beef, via the Castellana family, is an unprecedented effort to assist the Foundation for Angelman Syndrome Therapeutics in raising the desperately needed funds to further vital research.
Imagine a day when our children will never again suffer from seizures. Imagine a day when each can walk, not needing their wheelchair/walker. THEN Imagine a day when another child born with Angelman Syndrome will never experience seizures, when NO Angelman child will ever again be forced into a drug induced coma just to stop the seizures that ravage his/her body, or have to experience the physical struggles and sleepless nights.
Because of people/companies, like Western Beef, this CAN happen! It just amazes me that someone that has no connection to Angelman Syndrome, does something like this. We are such a little known syndrome, but people like this really give me so much hope; hope for a CURE!
Love one another!~Yvonne
Click the above article to read about the astounding support that Western Beef is giving to FAST. Please support Western Beef if they are in your area. If you are a parent, grandparent, sibling, aunt, uncle, cousin, or just a fan of a child with Angelman Syndrome, this is such a wonderful blessing to us all!!
As you can see from the article the partnership with Western Beef, via the Castellana family, is an unprecedented effort to assist the Foundation for Angelman Syndrome Therapeutics in raising the desperately needed funds to further vital research.
Imagine a day when our children will never again suffer from seizures. Imagine a day when each can walk, not needing their wheelchair/walker. THEN Imagine a day when another child born with Angelman Syndrome will never experience seizures, when NO Angelman child will ever again be forced into a drug induced coma just to stop the seizures that ravage his/her body, or have to experience the physical struggles and sleepless nights.
Because of people/companies, like Western Beef, this CAN happen! It just amazes me that someone that has no connection to Angelman Syndrome, does something like this. We are such a little known syndrome, but people like this really give me so much hope; hope for a CURE!
Love one another!~Yvonne
Sunday, December 12, 2010
FAST Gala
Hubby and I, with Colin Farrell, at the 2010 FAST Gala (Foundation for Angelman Syndrome Therapeutics)
Here is a link to the slideshow from the FAST photographer taken before and during the Gala.
Wednesday, December 8, 2010
Angels on Earth
My dear friend, and "Angel" mama, Kelly Ellison, has started a new business. Angels on Earth is her new online store. You will find the coolest Angel t-shirts I've ever seen, in men's, women's and children's sizes.
Kelly also has Angels on Earth coffee mugs, Angel earrings and necklaces. You can also purchase Angels and Idols
, a fabulous book written by "Angel" dad and songwriter, Regie Hamm.
, a fabulous book written by "Angel" dad and songwriter, Regie Hamm. 
Liquid melatonin is also available, for those who have sleepless nights with their AS kids! Kelly is dedicated to raising awareness for Angelman Syndrome!! New products will be added all the time that are useful for our kids and "parent reccomended"!
Kelly's little "angel" Kiano
The Angelman Syndrome awareness video that Kelly made:
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