2012 FAST Gala Video

This is so beautiful!! I smiled and sobbed through it, a few times! I am astounded at the number of kids in it this year, just shows how FAST has really connected to so many families around the world. It's just fabulous!! Joshua is the last picture in the "Put Me In Coach" section, wearing his baseball uniform, looking oh so handsome! ;-)



Love one another!~Yvonne

Gluten Free Pie Crust

I have been searching for quite a while for a good looking GF pie crust recipe, and this one looks very promising! I haven't tried it yet though, but it comes from The Renegade Kitchen blog, and I always love her recipes! I'm definitely going to be trying it soon!

Gluten free Crust

What you’ll need -
1 Cup Stoneground buckwheat flour
1/2 Cup Sorghum flour
1/2 Cup Tapioca/Cassava Flour
2T Coconut Sugar
1/4 tsp Sea Salt
5T Coconut Oil
2T Apple Cider Vinegar
4-5T water
Tools -
Mixing Bowl
Small bowl
9 inch Pie Plate
Whisk or Electric mixer (like a Kitchen Aid)

How to do it -
Step 1 – Preheat oven to 350F. Add dry ingredients, including sugar, to a mixing bowl and combine well.
Step 2 – Add coconut oil to dry mixture and incorporate until dry mixture turns crumbly.
Step 3 – Combine water and apple cider vinegar in a small bowl.
Step 4 – Add water mixture to dry mixture slowly, mixing with your hands or electric mixer (on low) until it begins to stick together well, but don’t let it get too wet. Work the dough into a ball with your hands a few times.
Step 5 – Press the dough evenly into the pie plate with your hands (you don’t need to roll it out first).  Sometimes I use a small glass to roll out the base of the crust while it is in the pie plate.
Step 6- Once you have the crust the way you want it, place it in the oven at 350F for 15min.  Once finished, remove and allow to cool while you prepare the filling.

Go on over to The Renegade Kitchen link and see the delicious sounding filling that she put into this pie crust! I don't do eggs, or I'd be all over it! ;-)

Love one another~Yvonne

Joshua's amazing painting @ the FAST Gala Auction

This is one of Joshua's amazing paintings, that he has allowed to go to FAST this week, for the auction on Saturday night, at the FAST Gala. He was pretty excited about sending it! It's on a 18''x24'' canvas. I saw in an e-mail tonight that FAST is having the Gala auction automated, which means that Gala guests and those at home will be able to bid using their cell phones or iPads, or computers. That is amazing! I am sure it will really help to bring in more money, when so many more people will have the ability to bid from home! I will try to post the links/info on how to do it, when I get more information.

In only 3 sleeps from now my daughter, my mom and I, will be on our way to Chicago for the FAST Gala! This will be my third time to go, and I really get more excited about it each year than I was the year before. So many more friends are made, and friendships that I already have are strengthened by the time together. Sometimes it feels like I have two lives, my Angelman Syndrome life, and my regular life but really that's not too odd for this Gemini lady, who has always felt as if I have two personalities. I love the support I get in the Angelman community, and I also really love giving others support when they need it. Our kids are amazing, AMAZING human beings, and a joy, but they really do require a lot of us, and sometimes it really takes the support of the community to get through some of the tough stuff. We are very blessed to have one another!

Creating A Meaningful Life for Jackson: Sally Richards at TEDxCanberra

Quite a few friends have created microboards for their children with disabilities, and this is truly in the spirit of what a microboard can accomplish. It can help to create, just as Sally says "a good, but ordinary life, that is truly worth living".

Watch this and let me know what your thoughts are. I have not begun this process yet myself, for Joshua, but it's something that I plan to do in the future. I am trying now, to take the baby steps to prepare for that future; building relationships for Joshua that are real and meaningful to him.


Love one another~ Yvonne

GF-Vegan Scrumptious Southern Cornbread

My back has been out and since I can't do any bending or lifting, I have been at a loss as what to do with myself, and have wound up doing a lot of experimenting with recipes. It's been fun!

This corn bread actually tastes like the REAL cornbread that I loved so much before having to go gluten free. I'm quite enamored by it's sweet crumbly perfection! It is definitely a new staple in the menu!

Find the recipe below!

Enjoy, and love one another!~ Yvonne

Just a Little Snuggle...

Love this boy!!!!!

Colin Farrell talks about Angelman Syndrome on Ellen

Foundation for Angelman Syndrome Therapeutics PSA by Hulu

Amazing!! Hulu.com, a website offering on-demand streaming video of TV shows, movies and webisodes to MILLIONS of viewers is now running the following Public Service Announcement for Angelman Syndrome.Thank you Hulu.com!

FAST and Angelman Syndrome Go Primetime!!

Wow!! Colin gave an absolutely beautiful speech at the end. Had me in tears!! He is such a beautiful soul, and a great dad to James. I loved his tribute to James' mom, Kim, and to all of the rest of us Angelman parents. Super sweet! I laughed so hard at the part about James later licking his award! That was something most people in the audience didn't get, but WE all do!!! The whole thing is lovely!! Watch!!

Love one another~Yvonne