Creating A Meaningful Life for Jackson: Sally Richards at TEDxCanberra

Quite a few friends have created microboards for their children with disabilities, and this is truly in the spirit of what a microboard can accomplish. It can help to create, just as Sally says "a good, but ordinary life, that is truly worth living".

Watch this and let me know what your thoughts are. I have not begun this process yet myself, for Joshua, but it's something that I plan to do in the future. I am trying now, to take the baby steps to prepare for that future; building relationships for Joshua that are real and meaningful to him.


Love one another~ Yvonne

The Pretty Simple World of Angelman

Hear What I Am Doing

HEAR WHAT I AM DOING


Please, mom,
hear what I am doing;
see what I am saying.
The world is a crazy, confusing, scary place for me.
I can’t do the things other kids do—my body doesn’t work right.

But inside, I’m just like other kids—I need to be loved and appreciated;

I need to belong, to fit in;

I need to contribute, to be useful;

I need to be heard and understood;

I desperately want you to be proud of me.

I want to tell you my needs, my feelings, my thoughts, but they get

trapped inside me because I can't get my mouth to say the words

There gets so much piled up inside me
that sometimes it just blows up everywhere
And I know you're disappointed in me
and you get angry at me
And somehow its all my fault.
My actions speak so loudly, you can’t see what I am saying.
Yet, my actions are my saying.
My body says what my mouth can't.
I act out my feelings,
but often the acting out is such a problem that my feelings go unnoticed.
But I have no other way of telling you my feelings.

I want to cooperate, to succeed, to contribute, to feel good about
myself, but to do that I must be heard.

Please, mom, hear what I am doing;

see what I am saying.

Author: Carolyn Hunsinger
Reprinted by permissionof the author

The Gift of Words

The Gift of Words: by Ursula Cranmer, AS mom
"This was made as a film-making project together with Diversity Peer Support Network."

Offense Taken!

Exceptional Parent Magazine

Check out the digital version of Exceptional Parent Magazine. It has so many great articles for parents of children with an array of disabilities.

If you are out of the country, United States, it is delivered in a digital format, no shipping charges!!

Everyone, and I mean everyone, should read this!

Outing the Prejudice: Making the least dangerous assumption
By Zach Rossetti and Carol Tashie

People with disabilities are people first. Because of the presence of a disability, a person may act, get around, look, dance, smile, read, learn, show what she knows, or communicate differently. The key here is that this is a difference and not a deficiency. As humans, we are all alike only in that we are all different. The fact that society tends to create a hierarchy of these differences, by labeling some of them deficiencies, is a manifestation of an out-dated paradigm plagued by prejudice. This inherent prejudice against people with disabilities means that some differences will be defined as deficiencies and looked down upon by all of those “higher up” on the social ladder.

What makes this even worse is that most people do not even recognize this prejudice. It is disguised as compassion and justified as “help.” The segregation of people with disabilities into “special” classrooms and separate lives is justified by this paradigm of deficiency. Too many people continue to believe that, “since they do not look or act like us, they must not be as good as us.” This way of thinking needs to be outed, challenged, and changed in order for all people to be valued just as they are.

Anne Donnellan, in her book Movement Differences and Diversity in Autism- Mental Retardation: Appreciations and Accommodations People With Communications and Behavior Challenges (1994), identified why this old paradigm was not sufficient and needs to be replaced by a more humanistic and respectful one. The key to the new paradigm is the concept of the “Least Dangerous Assumption.”

“Least dangerous assumption” states that in the absence of absolute evidence, it is essential to make the assumption that, if proven to be false, would be least dangerous to the individual. She continues by explaining that the “absence of evidence can never be absolute evidence of absence,” and as such, it is always safest and most respectful to make the “least dangerous assumption.”

Consider it this way. If I were to go fishing for a week and not catch anyfish, there would be two assumptions that could be made. First, I could say “there are no fish in the lake since I did not catch any, and I know what I am doing.” Or, second, I could say simply that “I did not catch any fish that week, and I will keep on trying.” The first assumption seems rather arrogant, while the second one is more realistic and respectful. (There is a third assumption that I could make which would be that I am not a good fisherman, but we won’t go there).The same holds true for students with disabilities. Imagine a child who does not talk with the spoken word and moves around using a wheelchair. Her teachers have worked with her for a month and have not yet seen any evidence of what she understands. In fact, they wonder if she knows or is aware of anything at all. These teachers can make one of two assumptions. They can assume that “what you see is what you get” and that this child does not know anything, that her brain is as empty as that lake. As such, they can educate her in a way that reflects those assumptions (perhaps segregated classes or regular classes with low or no expectations). Now imagine her as she graduates and uses a communication device to say, “Why did you treat me so poorly?”. I am smart and you wasted twelve years of my life!” A very dangerous assumption was made, with results that none of us would desire.

Now, consider the second assumption. These same teachers can recognize that her movement differences are differences and not deficiencies. They can assume that she knows lots and just isn’t currently able to show what she knows. Her brain is as full of knowledge and potential as that lake is of fish, but they just have not been able to reel anything in yet. As such, her schooling would reflect these high expectations and she would be considered and respected as a valued member of her school and classes. Now again, imagine her twelve years later at graduation, using her communication device to say, “Thank you from the bottom of my heart to all of my teachers who believed in me and made me feel as if I truly belonged and treated me like all of my classmates.” This is the least dangerous assumption, one that results in a young woman who can celebrate her full and fulfilling life.

But consider a third scenario as well. What if we never come up with a way for this young woman to communicate her intelligence? What if, after twelve years as a valued and respected student in all general education classes, we still do not know exactly what she has learned and knows? What harm was done? What was lost? Nothing. And that truly is the least dangerous assumption.

Understanding the concept of “least dangerous assumption” and acting on it are two different things. The idea of considering all people as capable and intelligent may not come naturally to some people due to the influence of society’s prejudices against people with disabilities. Most well intentioned adults and professionals have been taught to believe in the out-dated paradigm and, therefore, may make very dangerous assumptions about students with disabilities. Many people’s first impressions of people with disabilities are tainted by years of societal prejudice and media portrayals of what is enviable and worthwhile. While the power of these experiences is strong, we can no longer allow this to serve as a justification for the perpetuation of the prejudices against students or adults with disabilities.

The question we should all be asking ourselves is: “Do you really believe that the individual with disabilities is a valued and competent and unique person?” Think long and hard about that question. If you cannot honestly answer “yes,” then the next question is simply, “Why?” Think about your beliefs, your experiences, and the prejudice you have

been taught. Ask yourself how you can change those dangerous assumptions and mindsets. Talk with people who are friends, parents, siblings, lovers, and colleagues of people with disabilities. Listen to people who have been segregated or devalued because of the way they look or move or communicate. Learn everything you can about the many ways people communicate and get around and show us who they are and what they know. Introduce yourself to people who had labels of mental retardation while in school, who now are able to communicate their thoughts and feelings and tell us all, loud and clear, “I am intelligent!” Recognize your prejudices and work through them. It will not be as difficult as it first seems. And you will never again make assumptions about people that result in the loss of opportunity, experience, or respect.

All people are people first. Everyone belongs to this wonderful life. No one should have to conform to someone else’s standards before they are told that they are “good.” We all belong. We all have strengths and weaknesses and our own individual potential to be great people and to live the lives we want. We can all lead happy and fulfilling lives, supported by those around us to be successful adults. It is up to all of us to examine our own core beliefs and to spread the word of the least dangerous assumption. We can no longer allow the justification of a prejudice that is so dangerous. Now is definitely the time to believe that all people are valued individuals with limitless potential. Keep on fishing - the lake is overflowing!!!!

Rossetti, Z. & Tashie, C.

University of New Hampshire
Institute on Disability

10 Ferry Street, #14

Concord. NH 03301

http://www.iod.unh.edu

Taken from this website:
http://www.inclusive-solutions.com/leastdangerousassumption.asp

I cannot tell you how moving this is to me, to read this, and to hope for a world where everyone treats people with disabilities in this way!!!!

Love one another!~

Nick Vujicic...

Nick Vujicic beautiful...VERVE.

This is the new dvd that he has out and it looks amazing. I also searched through the videos section of the website and watched many of them, and they are all amazing. This one has to be my FAVORITE though!!! What do you think?

Love one another!~