2012 FAST Gala Video

This is so beautiful!! I smiled and sobbed through it, a few times! I am astounded at the number of kids in it this year, just shows how FAST has really connected to so many families around the world. It's just fabulous!! Joshua is the last picture in the "Put Me In Coach" section, wearing his baseball uniform, looking oh so handsome! ;-)



Love one another!~Yvonne

Creating A Meaningful Life for Jackson: Sally Richards at TEDxCanberra

Quite a few friends have created microboards for their children with disabilities, and this is truly in the spirit of what a microboard can accomplish. It can help to create, just as Sally says "a good, but ordinary life, that is truly worth living".

Watch this and let me know what your thoughts are. I have not begun this process yet myself, for Joshua, but it's something that I plan to do in the future. I am trying now, to take the baby steps to prepare for that future; building relationships for Joshua that are real and meaningful to him.


Love one another~ Yvonne

Colin Farrell talks about Angelman Syndrome on Ellen

Foundation for Angelman Syndrome Therapeutics PSA by Hulu

Amazing!! Hulu.com, a website offering on-demand streaming video of TV shows, movies and webisodes to MILLIONS of viewers is now running the following Public Service Announcement for Angelman Syndrome.Thank you Hulu.com!

FAST and Angelman Syndrome Go Primetime!!

Wow!! Colin gave an absolutely beautiful speech at the end. Had me in tears!! He is such a beautiful soul, and a great dad to James. I loved his tribute to James' mom, Kim, and to all of the rest of us Angelman parents. Super sweet! I laughed so hard at the part about James later licking his award! That was something most people in the audience didn't get, but WE all do!!! The whole thing is lovely!! Watch!!

Love one another~Yvonne

We WON!

FAST won the Vivint Gives Back contest. I am very late in reporting it, sorry! ;-) Here is video that you can watch of our family, and Paula Evans, chairperson of FAST, accepting the check at Vivint, in Provo, Utah.


FAST - Winner of Vivint Givesback Project 2011 from Marcel Cairo on Vimeo.
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I'll try to write more very soon, about the whole experience of going to Vivint, it was FABULOUS! Thanks so much to everyone who helped us to win this, it's amazing how many parents, and family, and friends, and even sales people at the mall (seriously) that were voting! What an experience to feel all of that love and support pouring into our community! Love one another~Yvonne